The Improving Community Engagement Throughout the Data Life Cycle program is working with the following partners:

Program Partners

CDC Foundation
The CDC Foundation helps CDC save and improve lives by unleashing the power of collaboration between CDC, philanthropies, corporations, organizations and individuals to protect the health, safety and security of America and the world. The CDC Foundation is the go-to nonprofit authorized by Congress to mobilize philanthropic partners and private-sector resources to support CDC's critical health protection mission.  

CDC’s Division of Reproductive Health (DRH)
CDC’s Division of Reproductive Health (DRH) within the CDC’s National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) is the focal point for issues related to reproductive health, maternal health, and infant health. For over 50 years, they have been dedicated to improving the lives of women, children, and families through research, public health monitoring, scientific assistance, and partnerships. DRH activities and programs provide support to organizations, institutions, providers, and consumers across the United States and around the world.

CDC’s Division of Population Health (DPH)
CDC’s Division of Population Health (DPH) within the CDC’s National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) works to improve the nation’s health by providing state and local data on chronic diseases, risk factors, and outcomes. DPH focuses on prevention strategies for specific populations and settings, facilitates the development and use of innovative public health programs and data analytics, undertakes prevention research, and advances evidence-based practices.

Data Equity Coalitions

The Black Equity Coalition and University of Pittsburgh’s Center for Social and Urban Research—Pittsburgh, PA
The Black Equity Coalition (BEC) is a group of physicians, researchers, epidemiologists, public health practitioners, social scientists, nurses, community funders, academics, activists, government officials, nonprofit and business leaders in the Pittsburgh area that formed to ensure an equitable response to the coronavirus pandemic, one based on socio-economic and culturally relevant data. Through its work, the BEC has been involved in organizing vaccination clinics and research studies in partnership with stakeholders in under-resourced communities. These initiatives build on the expertise of BEC leadership in leading community-engaged research initiatives. The BEC has been able to break down barriers to participation in surveys and has chipped away at vaccine hesitancy by placing empathy at the center of its approach.

University of Pittsburgh’s Center for Social and Urban Research (UCSUR) is home to the Western Pennsylvania Regional Data Center (WPRDC), which serves as a civic data intermediary in Allegheny County. The WPRDC provides an inclusive civic data infrastructure to over twenty organizations, including partners at Allegheny County and the City of Pittsburgh. UCSUR has expertise in managing a survey research registry, conducting interviews and focus groups, developing survey instruments and administering online, phone and mail surveys through the Survey Research Program (SRP).

Community Information Now (CI:Now)—San Antonio, TX
Founded as an unincorporated confederation in the late 1990s, Community Information Now (CI:Now) is a nonprofit local data intermediary in San Antonio, Texas. With a vision of improved lives and decreased disparities through democratized data, CI:Now has worked with dozens of local nonprofits of all sizes, grassroots organizations, local government departments, universities, local foundations and the media. CI:Now provides data, tools, analysis and training to inform decisions to improve Texas communities. They work to expand people’s access to data that is understandable, trustworthy, neutral and timely.

Data Driven Detroit (D3)—Detroit, MI
Data Driven Detroit (D3) has served as Metro Detroit’s local data intermediary since 2008, representing the region in the National Neighborhood Indicators Partnership (NNIP), a national network of local data intermediaries focusing on providing neighborhood-level data. Operating as a worker-owned social enterprise, D3's mission is to provide accessible, high-quality information and analysis to drive informed decision-making, enabling informed conversations in the broader Detroit region about the current state of our community, how to best deliver resources, and create the deepest impact.  With its Neighborhood Vitality Index pilot project, D3 is at the forefront of many of NNIP's efforts to improve and expand local data collection efforts to provide more actionable information than is traditionally available through federally administered surveys.

DataWorks NC—Durham, NC
Founded in 2016, DataWorks NC is a nonprofit based in Durham, North Carolina serving neighbors, neighborhoods, nonprofits and local governments that share goals of racial equity and community power. DataWorks NC democratizes data to facilitate an empowered, productive and equitable community. Their priority is to benefit Durham’s communities of color, low income and communities that have been historically disinvested in. They do this by providing community data tools, connecting neighborhoods and community groups with data support and convening and participating in community conversations.

Neighborhood Nexus—Atlanta, GA
Since 2009, Neighborhood Nexus has served as a community data intermediary, providing data, tools and expertise as a catalyst to create more equitable opportunities for Atlanta’s residents. Nexus’s mission is to grow a culture of data-informed decision-making among Georgia’s social sector leaders. They accomplish this by building and maintaining a civic data infrastructure; building the capacity of nonprofit, state agency and local government professionals; community engagement; and creating custom data tools and analysis. As a local data intermediary, they democratize access to essential data and information to local stakeholders—leaders, practitioners, and residents alike–to inform their decisions. Nexus operates as data translator, educator, convener, collaborator, and voice for change, and works to uncover disparities, understand communities' needs, and empower the use of data to inform action, whether policy, programming or investments.

Research Partner Organization

The National Alliance against Disparities in Patient Health (NADPH)—Woodbridge, VA
The National Alliance against Disparities in Patient Health (NADPH) is a nonprofit, health research organization applying scientific research and technology, community education and outreach and advocacy to reduce health disparities and improve public health outcomes for our Nation. NADPH operates through a national partnership ecosystem that spans government, academic, nonprofit and industry stakeholders. One of NADPH’s major objectives is to Bridge the Gap in access to advanced, precision-based healthcare in underserved and under-resourced communities. NADPH seeks to do this by providing access to information, subject matter experts and technology that help community members: 1) raise their awareness and education about the array of factors impacting their quality of health and healthcare; 2) capture, manage, and understand their health information across its various domains and 3) use this increased knowledge and access more actionably to make better decisions about their health and healthcare.